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We promote the community ‘voice’ in health research.

Definitions

Consumer

Refers to people who directly or indirectly make use of a health service e.g. patients and potential patients, carers, and people who use health care services. Collectively, ‘consumers’ and ‘community members’ may be referred to as ‘the public’

 

Consumer representative

A member of a committee, steering group or similar who voices the consumer perspective and takes part in the decision-making process on behalf of consumers. This person may be nominated by, and may be accountable to, an organisation of consumers. A consumer representative may be trained and supported to advocate for consumer centred health care

 

Carers

Families or friends who provide unpaid care

 

Community

A group of people sharing a common interest but not necessarily a common geographic location. Different types of communities are likely to have different perspectives and approaches to their involvement in research

 

Stakeholders

An individual or group from within or outside the organisation who has a key interest in the research. This might include members of professional bodies, government or non-government agencies, industry or research funders as well as consumers and community members. Stakeholders can provide support or expertise and may influence decisions about the research and its findings

 

Health and medical research

Research with a human health focus

 

Research

An original investigation undertaken to gain knowledge, understanding and insight

 

Research Process

The planning, funding, and conduct of an individual piece of research in addition to the implementation of research findings or the publication of research findings

 

Researcher

A person who conducts research

 

Research institution

A place where research is conducted