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We promote the community ‘voice’ in health research.

Western Australia Register of Developmental Anomalies

Approximately one baby in every twenty (5%) is born with a developmental anomaly in Western Australia. The Western Australian Register of Developmental Anomalies (the Register) records and monitors developmental anomalies in Western Australia using two registries – the Western Australian Birth Defects Registry and the WA Cerebral Palsy Registry. Information about where and when these events occur is collected, and this guides research into the causes, prevention and management of these conditions.

The Register has been instrumental in a number of major public health initiatives, including the mandatory fortification of bread making flour in Australia to reduce the incidence of spina bifida.

The Western Australian Register of Developmental Anomalies collects information about
 where and when developmental anomalies are occurring in Western Australia. The Register has a community reference group, which provides comments on applications from researchers to access Register data for new grant applications. The community reference group was also involved in the development of the Register website and printed materials.


Posted in Document reviewers, Reference groups