Read about how CCHRN are working to involve consumers in COVID-19 research and find out how you can contribute

We promote the community ‘voice’ in health research.

Different groups

Research often focuses on specific groups of consumers and community members. The following articles give examples of how these groups can be involved in research.

Asking what matters
Wiering, B, de Boer D, Delnoij D. Asking what matters: The relevance and use of patient-reported outcome measures that were developed without patient involvement. Health Expect. 2017;00:1-12

Issues for families following a catastrophic injury in Western Australia
Bulsara C E, Cuesta Briand B, McKenzie A, Moorin R. Communication factors impacting on the ability of a family following a catastrophic injury in Western Australia. Nursing and Palliative Care, 2016, DOI:10.15761/NPC.1000134 Volume 1(6): 5-6

Principles related to involving older people in research
Blair T, Minkler M. Participatory action research with older adults: Key principles in practice. The Gerontologist 2009;49(5):651–662

Consumer involvement in indigenous research
Mooney-Somers J, Maher L. The Indigenous Resiliency Project: a worked example of community-based participatory research. NSW Public Health Bulletin 2009;20(7-8):112-118

Involvement of parents of children with a physical disability
Hutton E, Coxon K. Involving parents as service users in an interprofessional research project. Journal of Interprofessional Care 2008;22(6):661–663

Methodological issues in involving older people in research
Ross F, Donovan S, Brearley S, Victor C, Cottee M, Crowther P, Clark E. Involving older people in research: methodological issues. Health and Social Care in the Community 2005;13(3):268–275