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We promote the community ‘voice’ in health research.


These articles have been selected because they provide an introduction to consumer and community participation in research and the variety of factors that can influence this involvement.

Briefing notes for researchers
INVOLVE. Briefing notes for researchers: Involving the public in NHS, public health and social care research. INVOLVE, Eastleigh 2012

Introduces consumer and community involvement in research in Australia
Payne JM, D’Antoine HA, France KE, McKenzie AE, Henley N, Bartu AE, Elliott EJ, Bower C. Collaborating with consumer and community representatives in health and medical research in Australia: results from an evaluation. Health Research Policy and Systems 2011;9:18

Considers the consumers perspective
Chalmers I. What do I want from health research and researchers when I am a patient? BMJ 1995; 310:1315-1318

The advantages of involvement
Entwistle VA, Renfrew MJ, Yearly S, Forrester J, Lamont T. Lay perspectives: advantages for health research. BMJ 1998;318:463-466

The negative impact of involvement on researchers
Minkler M, Fadem P, Perry M, Blum K,Moore L, Rogers J. Ethical dilemmas in participatory action research: a case study from the disability community. Health Education and Behaviour 2002:29(1):14-29

Introducing involvement at an organisational level
McKenzie A, Hanley B. Consumer and Community Participation in Health and Medical Research: A practical guide for health and medical research organisations. The University of Western Australia and the Telethon Institute for Child Health Research, Perth 2007

Involvement guide for researchers
Hanley B, Bradburn J, Barnes M, Evans C, Goodare H, Kelson M, Kent A, Oliver S, Thomas S, Wallcroft J. Involving the public in NHS, public health, and social care research: Briefing notes for researchers (second edition) INVOLVE, Eastleigh 2004