Read about how CCHRN are working to involve consumers in COVID-19 research and find out how you can contribute

We promote the community ‘voice’ in health research.

The benefits

The benefits of consumer and community involvement for driving changes in policy and practice.

Consumer involvement informing health policy and providing framework for effective translation
O’Brien MJ, Whitaker RC. The role of community-based participatory research to inform local health policy: A case study. Journal of General Internal Medicine 2011;26(12):1498-1501

Changing research outcomes based on consumer involvement in rheumatology
Kirwan JR, Newman S, Tugwell PS, Wells GA. Patient perspective on outcomes in rheumatology – A position paper for OMERACT 9. Journal of Rheumatology 2009; 36(9):2067-2070

Community involvement in research resulting in community-level change in health
Cook WK. Integrating research and action: a systematic review of community-based participatory research to address health disparities in environmental and occupational health in the USA. BMJ Epidemiology and Community Health 2008;62:668–676

Getting appropriate representation of community to reduce health inequalities in research.
Beresford P. User involvement, research and health inequalities: developing new directions. Health and Social Care in the Community 2007;15(4):306–312

Lessons learned from community involvement to improve social determinants of health
Krieger J, Allen C, Cheadle A, Ciske S, Schier JK, Senturia K, Sullivan M. Using community-based participatory research to address social determinants of health: Lessons learned from Seattle Partners for Healthy Communities. Health Education & Behaviour 2002;29(3):361-382

Integrating research with action to improve health disparities
Schulz AJ, Israel BA, Parker EA, Lockett M, Hill Y, Willis R. The East Side Village Health Worker Partnership: Integrating research with action to reduce disabilities. Public Health Reports 2001;116:548-557