We promote the community ‘voice’ in health research.

Priority setting partnership

We work with consumers, community members and service providers to identify their priorities for research. The process that we use is based on the Priority Setting Partnership developed by the James Lind Alliance. Once identified the priority areas will be listed and accessible to researchers ensuring that their research meets the needs of the community. Consumers and community members are rarely involved in setting research priorities. This innovative approach sees the community ‘voice’ embedded identifying and prioritising research ideas.

Alcohol use during pregnancy priority setting project

The Fetal Alcohol Spectrum Disorder Research Australia Centre for Research Excellence is a national research program that aims to reduce the effects of alcohol use during pregnancy by:

  • supporting families to reduce or stop alcohol use in pregnancy;
  • increasing awareness of Fetal Alcohol Spectrum Disorder;
  • finding effective treatment; and
  • improving access to services for children with Fetal Alcohol Spectrum Disorder and their families.

Click here to read about involving consumers and community in this research project both from the perspective of the researcher, Jan Payne, and consumer representative, Julie Whitlock.

The report for the Fetal Alcohol Spectrum Disorder Priority Setting Partnership has now been released. See the top ten research priorities for Fetal Alcohol Spectrum Disorder Research. The report details the process of the priority setting partnership as well as the outcomes of the survey, the ranking survey and the consensus workshop.

A big thank you to all who attended on the day!

Download your copy of the Fetal Alcohol Spectrum Disorder Priority Setting Partnership Report here

The family and domestic violence community priority setting  for research project

Our aim of the project was to:

  • identify the issues and questions that consumers and community members consider are important about family and domestic violence
  • develop a list of community priorities that will be used to inform future research in this area
  • ensure that people who have experienced family and domestic violence are included in the development of priorities for research in this area

We are not sure what is really effective in preventing and supporting people who have experienced family and domestic violence. Identifying research priorities in this area will help funding agencies to direct their limited funds to research that is likely to have the most impact and importance to the community.

The project consisted of a survey to identify the issues and questions important to people who have experienced family and domestic violence and those that support them.

The survey was followed up by a workshop to prioritise the issues and questions identified.

You can find out more about the process and view the list of top ten priorities in our report.

The definition for “family and domestic violence” is considered to be behaviour which results in physical, sexual or psychological damage, forced social isolation, economic deprivation, or behaviour which causes the victim to live in fear.

Living longer project

We are experiencing changes that will extend lives long beyond what has previously been regarded as old age. A child born today will have a 50/50 chance of living to more than 105 years of age and by 2040 this will be 110 years.  It is important that we think about how to maximise the quality of these extra years so everyone can take advantage of the opportunities that living longer might bring.

For this reason, researchers from the University of Western Australia and the WA Health Translation Network’s Consumer and Community Health Research Network want to hear about what you would like to see researched to help your decision-making and planning for the future.

If you require any further information about the Living Longer project, please contact either:
Prof Colleen Fisher on (08) 6488 2193 or email colleen.fisher@uwa.edu.au or
Rebecca Nguyen on (08) 6488 8176 or email Rebecca.Nguyen@uwa.edu.au