Understanding, measuring and evaluating the impact that consumer and community involvement has on research.
Service user reflections on the impact of involvement in research
Gordon J, Franklin S, Eltringham SA. Service user reflections on the impact of involvement in research. Research Involvement and Engagement 2018; 4:11.
Understanding how context and mechanism influence the impact of public involvement in research
Staley K, Buckland S, Hayes H, Tarpey M. ‘The missing links’: understanding how context and mechanism influence the impact of public involvement in research. Health Expectations 2014 Dec;17(6):755-64. doi: 10.1111/hex.12017. Epub Oct 29 2012.
Evaluating the impact of involvement
Barber R, Beresford P, Boote J, Cooper C, Faulkner A. Evaluating the impact of service user involvement on research: a prospective study. International Journal of Consumer Studies 2011;35:609-615
Barber R, Boote JD, Parry GD, Cooper CL, Yeeles P, Cook S. Can the impact of public involvement on research be evaluated? A mixed methods study. Health Expectations 2012;15(3):229-241
Collaborating with consumer and community representatives in health and medical research in Australia: results from an evaluation
Payne JM, D’Antoine HA, France KE, McKenzie AE, Henley N, Bartu AE, Elliott EJ, Bower C. Collaborating with consumer and community representatives in health and medical research in Australia: results from an evaluation. Health Research Policy and Systems 2011;9:18
Understanding the impact of involvement
Staniszewska S, Adebajo A, Barber R, Beresford P, Brady LM, Brett J, Elliott J, Evans D, Haywood KL, Jones D, Mockford C, Nettle M, Rose D and Williamson T. Developing the evidence base of patient and public involvement in health and social care research: the case for measuring impact. International Journal of Consumer Studies 2011;35:628–632
Impact of consumer involvement in National Health Service research
Wyatt K, Carter M, Mahtani V, Barnard A, Hawton A. & Britten N. The impact of consumer involvement in research: An evaluation of consumer involvement in the London Primary Care Studies Programme. Family Practice 2008;25(3):154-161
Measuring the impact of involvement
Staniszewska S, Herron-Marx S, Mockford C. Measuring the impact of patient and public involvement: the need for an evidence base. International Journal for Quality in Health Care 2008;20(6):373-374
Evaluation of impact of involvement on older people
Fudge N, Wolfe CDA, McKevitt C. Involving older people in health research. Age and Ageing 2007;36:492-500
Staley. K Exploring Impact: Public involvement in NHS, public health and social care research. INVOLVE, Eastleigh 2009