Articles which demonstrate a range of methods used to integrate consumer and community involvement into different aspects of research.
Models and impact of patient and public involvement in studies
South A, Hanley B, Gafos M, Cromarty B, Stephens R, Sturgeon K, Scott K, Cragg W J, Tweed C D, Teera J, Vale C L. Models and impact of patient and public involvement in studies carried out by the Medical Research Council Clinical Trials Unit at University College London: findings from ten case studies. 2016; 17:376 DOI 10.1186/s13063-016-1488-9
Breen LJ, O'Connor M. From consultation to participation in public health research: reflections on a community-based research partnership. BMC Research Notes 2014, 7:93 DOI: 10.1186/1756-0500-7-936
Jones KH, McNerney CL, Ford DV. Involving consumers in the work of a data linkage research unit. International Journal of Consumer Studies 2014;38:45–51
Bastian H, Scheibler F, Knelangen M, Zschorlich B, Nasser M, Waltering A. Choosing health technology assessment and systematic review topics: The development of priority-setting criteria for patients’ and consumers’ interests. International Journal of Technology Assessment in Health Care 2011;27(4):348-356
Cashman SB, Adeky S, Allen III AJ, Corburn J, Israel BA, Montaño J, Rafelito A, Rhodes SD, Swanston S, Wallerstein N, Eng E. The power and the promise: Working with communities to analyze data, interpret findings, and get to outcomes. American Journal of Public Health 2008;98(8):1407 – 1417
Boote J, Baird W, Beecroft C. Public involvement at the design stage of primary health research: A narrative review of case examples. Health Policy 2010;95(1):10-23
Staniszewska S, Jones N, Newburn M, Marshall S. User involvement in the development of a research bid: barriers, enablers and impact. Health Expectations 2007;10(2):173-183
Nilsen ES, Myrhaug HT, Johansen M, Oliver S, Oxman AD. Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. Cochrane Database of Systematic Reviews 2006, Issue 3. Art. No.: CD004563. DOI: 10.1002/14651858.CD004563.pub2
Telford R, Boote JD, Cooper CL. What does it mean to involve consumers successfully in NHS research? A consensus study. Health Expectations 2004;7:209–220
Rhodes P, Nocon A, Booth M, Chowdrey MY, Fabian A, Lambert N, Mohammed F, Walgrove T. A service users' research advisory group from the perspectives of both service users and researchers. Health and Social Care in the Community 2002;10(5):402-409