Putting patients first in cancer care
Have you or someone you care for had a diagnosis of cancer? Are you interested in what matters most to people living with cancer?
Researchers are looking for four people with a lived experience of lung, colorectal, ovarian, or prostate cancer to join an established community reference group.
About the project/vacancy
The Patients First: the Continuous Improvement in Care - Cancer Project (the ‘CIC Cancer’ project) will collect information on what matters most to people living with cancer (called patient reported outcome measures) along with the clinical information which is routinely collected. The patient reported outcome measures will be used to provide feedback to the healthcare services on the care they provide, it will help to identify gaps in services, and to develop new research to address these gaps and improve clinical service. This project will directly improve the lives of those diagnosed with cancer.
As the needs of patients with different cancer types vary, small teams have been formed to take responsibility for implementing the project by cancer type. The cancer types included in the ‘CIC Cancer’ project are: lung, colorectal, ovarian, breast and prostate cancers.
About the position
The ‘CIC Cancer’ project team would like four people with a lived experience of cancer (either as a patient or carer) to join the project’s community reference group. The community reference group provide advice including how and where/when the patient reported outcome measures are collected, and have ongoing input into the project’s activities.
What am I expected to do?
- Provide advice on implementation of patient reported outcome measures
- Provide input into how patient reported outcome measures are collected
- Advise on recruitment into the project
- Provide input into the ‘CIC Cancer’ communication plan
- Provide cancer-specific feedback and advice
Additional role and responsibilities:
The role within the community reference group also includes opportunities to work more closely with the teams responsible for each cancer type. Each of the specific cancer teams would like to involve members of the group as ‘research buddies’ bringing their lived experience of the individual cancer type.
What skills or experience do I need?
You are someone who has had a diagnosis of cancer, or a carer of someone who has had cancer (specifically lung, colorectal, ovarian, or prostate).
Please note* The project is also researching care in breast cancer - current membership of the group already includes women with this lived experience and is not currently required.
It is also desirable if you have:
- Committee experience
- An understanding of consumer and community involvement in research
How long am I expected to be involved?
This is a four year project however terms of appointment can be flexible.
It's expected the community reference group will meet four times per year, with meetings 2 hours in duration.
Research buddies will be required to attend an additional two meetings per year, with meetings 1 hour in duration.
Where will meetings be held?
Meetings will be held in the Perth metropolitan area; locations may vary (likely the University of Western Australia or the main tertiary hospitals). Those living in rural or remote areas or who are unable to attend in person are able to teleconference or videoconference into meetings.
What support is offered?
Consumers/community members will be offered an honorarium of $30/hour and support is offered by the Consumer and Community Health Research Network.