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We promote the community ‘voice’ in health research.

Living with Melanoma

Have you or someone you care for, had a diagnosis of melanoma? Would you like to share your insights with researchers on what it’s like to live with melanoma?

Researchers at Edith Cowan University are looking for a community member, with a lived experience of Melanoma, to assist with their research as a both a Research Buddy and as a member of a small established Consumer Reference Group.

About the project/vacancy

The vacancy is to support a number of projects within the Edith Cowan University Melanoma Research Group. This includes providing specific lived experience insights to a new project using auto-antibody measurements to predict treatment responses in late stage melanoma patients.

Melanoma researchers at Edith Cowan University know there’s a link between cancer and autoimmune responses. There are natural antibodies found in blood which can be used to track cancers. This research project hopes to find out if researchers can predict an autoimmune responder through the natural antibodies found in blood in late stage melanoma patients (stage 3 and 4).

About the position

The Melanoma Group would like to add a community member with a lived experience of melanoma (either as a patient or carer) to their Consumer Reference Group. This group provides ongoing input into the study design and involvement activities of multiple projects. Consumers are invited to regular laboratory meetings in which recent findings are discussed and consumers are asked for their opinion on the Melanoma Research Group’s research direction from a lived experience perspective. You’ll also assist with the lay translation and dissemination of the results to the broader community.

The Melanoma Research Group would also like members of the Consumer Research Group to join them at their annual lab tour open days, to be on hand for questions about their personal experience of melanoma.

What am I expected to do?

  • Provide insights into the lived experience of a Melanoma Patient
  • Act as a research buddy for the new Melanoma Autoimmune Responder Project
  • Review documents and attend research meetings to provide: input into the development of the study design of research projects; ongoing support during projects; and support during dissemination of results back to the community
  • Attend lab tour open days and answer questions

What skills or experience do I need?

You are someone who has had a diagnosis of melanoma, or a carer of someone who has or had melanoma.

It's also desirable if you have:

  • Committee experience
  • An understanding of consumer and community involvement in research
  • An ability to understand scientific laboratory based research

How long am I expected to be involved?

You are invited to be involved for a minimum of 3 years, however, the terms of the appointment can be flexible.

The team meetings are usually held 4 times a year, with meetings 2 hours in duration.

Open laboratory days are held once a year, with a duration of 3 hours.

As a research buddy, you will be required to attend an additional two meetings per year, with meetings 1 hour in duration.

Where will meetings be held?

Meetings will be held at the Joondalup Campus of Edith Cowan University

What support is offered?

Consumers/community members will be offered an honorarium of $30/hour and support is offered by the Consumer and Community Health Research Network

Applications close: 18 May 2019

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