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We promote the community ‘voice’ in health research.

UPLIFT online wellbeing project National Reference Group

Are you aged 16 – 24 years? Do you have a chronic physical condition (asthma, diabetes, heart disease, chronic fatigue, chronic pain or an autoimmune disease)? Do you want to make a difference to the mental health and wellbeing of other young people living with these conditions?

Researchers at Telethon Kids Institute are looking for 8 young people to join a national community reference group to help develop an exciting new program of research.

Happy teenage boys and girls relaxing with mobile phones outdoor and with skate boards

About the project/vacancy

Researchers at Telethon Kids Institute are developing a new program of research, with the support of the Starlight Foundation. The aim of the program is to understand the mental health and wellbeing needs of young people with chronic physical illnesses and to find effective ways of improving their wellbeing and resilience.

The Youth Reference Group will be asked to advise on a number of different projects within the UPLIFT program and provide feedback on how best to engage young people in this research.

About the position

Researchers at the Telethon Kids Institute are looking for 8 young people aged 16 – 24 years to join a new Australia-wide Reference Group.

What am I expected to do?

Members of the Youth Reference Group will:

  • Share their experiences of what it is like to live with a chronic physical condition
  • Provide input into new research ideas and the design of different research projects
  • Advise on the best ways for promoting the research to other young people
  • Give feedback on the program website and review online content
  • Provide feedback on new strategies and resources being developed to improve mental health and wellbeing outcomes for young people with chronic physical illnesses
  • Provide feedback on project results and next steps for the research

There will also be opportunities for members of the reference group to work more closely with researchers on specific projects. For example, the first project will involve reviewing the content and look of an online program designed to promote positive wellbeing, and providing feedback using an online form.

What skills or experience do I need?

The research team is looking for young people aged 16 - 24 who have or who are in remission from a chronic physical condition (diabetes, autoimmune disease, asthma, allergies, heart disease, cancer, chronic fatigue, chronic pain, etc).

The researchers are keen to hear from young people living in all areas of Australia.

How long am I expected to be involved?

The Reference Group will meet two times per year over the next 3 years. Each meeting will be no longer than 2 hours.

Group members will be invited to attend additional meetings for specific projects or to review program materials outside of meetings. Each group member will be expected to:

  • attend no more than two additional meetings per year; and
  • only spend a maximum of four hours per year reviewing online program materials

Where will meetings be held?

All meetings will be held virtually (online video or teleconferencing using Zoom).

What support is offered?

$30 honorarium per hour for meetings attended and time spent reviewing online content. Ongoing support and mentoring will be offered by the Consumer and Community Health Research Network.

Applications close: 28 July 2019

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