Balance Specific Rehab after Stroke
Balance problems after a stroke are common. Lateropulsion is a type of balance problem. Around 10% of people after a stroke have this balance problem however it is unknown how long this balance problem lasts or if it has any long-term effects. Researchers from Curtin University are looking for two (2) Consumer Representatives to join their team and ensure the project is informed from a lived experience.
About the project/vacancy
The researcher wants to find out what patients believe or know about this balance problem. They want to better understand if people with this problem fall more often. Knowing more about lateropulsion should help people plan for their own treatments to enable them to move more freely for longer after a stroke.
About the position
Researchers are looking for two (2) health consumers who have a lived experience of a moderate to severe stroke leading to an inability to walk independently for at least four (4) weeks after their stroke
What am I expected to do?
The successful consumers will be required to:
- Discuss your experiences of relearning to walk, the communication and balance challenges you faced - this will help the team to develop questions for surveys required for the research
- Share any concerns you may have around existing areas of focus, or lack of, in rehabilitation that enables the return of an adequate quality of life
- Have input into the development of Patient Information Sheets and Consent Forms prior to the ethics applications
- Support the development of a Participation strategy to enable as many participants as possible
- Offer feedback into the analysis of the data once collected
- Give feedback into how the findings can improve future rehabilitation programs
- Assist the researcher to inform the wider community of the research and its findings through your connections within existing support networks
What skills or experience do I need?
You will need to have a lived experience of a moderate to severe stroke leading to an inability to walk independently for at least four (4) weeks after the stroke. An interest in the challenges of rehabilitation after stroke and a willingness to share your experiences, potentially in a group setting, would be an advantage.
How long am I expected to be involved?
A one-hour meeting initially in December with up to one hour of pre-reading.
The project planning has commenced and is scheduled to start in 2020 with no completion date specified. Your involvement will include up to 3 meetings in 2020 and the potential for further meetings in 2021 and 2022. In the last year there is likely to be more involvement with your experience needed to inform the results of the project and how it can be translated into better health care.
Where will meetings be held?
The lead researcher is based at Curtin University, Bentley campus, and initial meetings are planned to be based there; however there will be an option to meet at Perth Children's Hospital or join meetings via Skype or other online options if preferable.
What support is offered?
Consumers will be offered an honorarium of $35 per meeting. Training is offered by the Consumer and Community Health Research Network