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Patients First: the Continuous Improvement in Care – Cancer Project Community Reference Group Additional Members

Have you, or someone you care for, had a diagnosis of lung or colorectal cancer? Are you interested in what matters most to people living with cancer?

The research team are looking for four people with a lived experience of lung or colorectal cancer to join an established Community Reference Group

doctor and patient sit across the table from each other with a laptop and questionnaire between them

About the project/vacancy

Patients First: the Continuous Improvement in Care - Cancer Project (the 'CIC Cancer' Project) collects information on what matters most to people living with cancer (called patient reported outcome measures) along with the clinical information which is routinely collected. The patient reported outcome measures are used to:

  • Provide feedback to the healthcare services on the care they provide
  • Help to identify gaps in service
  • Develop new research to address these gaps and improve clinical services

This project will directly improve the lives of those diagnosed with cancer.

As the needs of patients with different cancer types vary, small teams have been formed to take responsibility for implementing the project by cancer type. The types included in the 'CIC Cancer' Project are:

  • Lung
  • Colorectal
  • Ovarian
  • Breast
  • Prostate

This established Group is currently looking for people with lived experiences of lung or colorectal cancer only

About the position

The 'CIC Cancer' Project team would like four people with a lived experience of lung or colorectal cancer (either as a patient or carer) to join the Project's established Community Reference Group. The Group have ongoing input into the Project's activities, including how and where or when the patient reported outcome measures are collected

What am I expected to do?

Group members are expected to:

  • Provide advice on implementation of patient reported outcome measures
  • Provide input into how patient reported outcome measures are collected
  • Advise on recruitment into the Project
  • Provide input into the 'CIC Cancer' communication and engagement activities
  • Provide cancer-specific feedback and advice

Additionally, the role within the Community Reference Group may also include opportunities to work more closely with the teams responsible for each cancer type. Each of the specific cancer teams may involve members of the group as Research Buddies, bringing their lived experience of the individual cancer type

What skills or experience do I need?

You're someone who has had a diagnosis of cancer, or a carer of someone who has had cancer (specifically lung or colorectal cancer)

It is also desirable if you have:

  • Committee experience
  • An understanding of consumer and community involvement in research

Please note the 'CIC Cancer' Project is also researching care in breast, ovarian and prostate cancer - current membership of the group already includes people with this lived experience

How long am I expected to be involved?

The Community Reference Group meets approximately four times per year, with meetings up to two hours in duration.

The project is funded for five years, and is currently in its third year. Terms of appointment for Community Reference Group members can be flexible

Where will meetings be held?

Due to COVID-19, all meetings will currently be held virtually using an online meeting software such Zoom. Once social distancing rules have been relaxed, meetings will be held in the Perth Metropolitan area; locations may vary (likely the University of Western Australia or the main tertiary hospitals)

What support is offered?

An honorarium of $30/hour is offered. Training and support is offered by the Consumer and Community Health Research Network

Applications close: 05 June 2020

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